Whiston, L., Amering, M., Dick, S., Giffin, M., Kennan, A., Murphy, P., Scott, T., Walsh, J., Burke, H., Gallagher, P., MacGabhann, L., Matthews, A. and Lambert, V.

European Quality Assurance Forum

An Institutional Case Study: Developing a plan to support patient and public involvement in health and social care research

Berlin

Oral Presentation

2019

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Background: Public and patient involvement (PPI) is research conducted ‘with’ or ‘by’ patients or members of the public rather than ‘to’, ‘for’ or ‘about’ them. International support for PPI is evident with benefits recognised by key research organisations. Methods: A plan to support PPI in health and social care research in Dublin City University was co-developed. This included thematic analysis of six dialogue groups with 60 participants including patients, members of the public, researchers, clinicians and policy leaders. Results: A plan was co-developed, using the principles of PPI. Overall participants were positive about the plan developed: for example, ‘it looks fantastic’ [DG03]. Key themes identified from dialogue groups were; development and feedback, mutual understanding, training and support, communication and accessibility, implementation and sustainability. Conclusion: The co-design process presented is easily transferable to other contexts and settings, which will ensure quality improvements in embedding PPI in health and social care research.

Health Research Board and the Irish Research Council